967 posts analyzed Updated Sep 2026
Averages 32 posts/day, top 5% activity. Most active Tuesdays around 1 PM UTC. Mostly text posts (93%).
r/ehlersdanlos Traffic & Engagement r/ehlersdanlos Traffic & Engagement
Volume and engagement over time Posting volume and engagement over time
Post Format
Upvote Distribution
How upvoted posts perform Only posts with 2+ upvotes. The bands below show how those posts are spread by upvote count.
r/ehlersdanlos Most Active Times When r/ehlersdanlos Is Most Active
Peak posting by day and hour (UTC) When this community posts most, by day and hour (UTC)
Most Active by Day
r/ehlersdanlos Flair Performance r/ehlersdanlos Flair Performance
Upvotes and volume by flair Average upvotes and post volume by flair
| Flair | Posts | Upvotes |
|---|---|---|
| Seeking Support | 216 (22.6%) | 9 |
| Similar Experiences? | 177 (18.6%) | 12 |
| Helpful Tips, Tricks, and Products | 176 (18.4%) | 14 |
| General | 154 (16.1%) | 9 |
| Rant/Vent | 96 (10.1%) | 52 |
| Discussion | 60 (6.3%) | 18 |
| Resources/News/Research | 19 (2.0%) | 8 |
| Lighthearted | 15 (1.6%) | 234 |
| Work, School, and Accommodations | 11 (1.2%) | 26 |
| Good News! | 11 (1.2%) | 22 |
Post Type Breakdown
Share by text, image, or link Share of posts by format: text, image, or link
r/ehlersdanlos Trending Keywords Trending Keywords in r/ehlersdanlos
Ranked by how often they appear Title keywords ranked by how often they appear
| Keyword | Mentions ▼ | Upvotes | Comments |
|---|---|---|---|
| eds | 76 (7.9%) | 20 | 11 |
| pain | 73 (7.5%) | 25 | 15 |
| heds | 64 (6.6%) | 18 | 11 |
| anyone | 63 (6.5%) | 15 | 11 |
| advice | 37 (3.8%) | 6 | 6 |
| help | 35 (3.6%) | 5 | 7 |
| diagnosis | 27 (2.8%) | 26 | 8 |
| else | 25 (2.6%) | 33 | 19 |
| tips | 22 (2.3%) | 7 | 9 |
| recommendations | 20 (2.1%) | 5 | 5 |
r/ehlersdanlos Mentioned Domains Mentioned Domains in r/ehlersdanlos
Most linked sites Most linked sites in this subreddit
This community doesn't link off-site.
Its posts are text, images, or discussion rather than outbound links.
r/ehlersdanlos Top Posts Top Performing Posts in r/ehlersdanlos
Highest-performing posts Highest-performing posts. Each title links to Reddit.
Hope You Had A Good Day!
Before I was diagnosed I made this for a contest at work not realizing fingers don't bend that way
I finally understand what I thought to be a film trope!
Doctors should feel embarrassed not to know more about HSD and hEDS
Dental surgeon told me an interesting thing re: tooth stuff and EDS (and other chronic illnesses) and wanted to see if it rang true for anyone else
Summer Fairy with Ehlers-Danlos Syndrome
Are people not in pain?
First time translating my chronic pain into art
the worst bruise ever (NSFW)
I love my parents but they're under scrutiny after my diagnosis.
| Title | Upvotes | Comments | Type | Date |
|---|---|---|---|---|
| Hope You Had A Good Day! | 1.5K | 19 | image | Sep 27 |
| Before I was diagnosed I made this for a contest at work not realizing fingers don't bend that way | 734 | 57 | image | Sep 29 |
| I finally understand what I thought to be a film trope! | 581 | 94 | text | Sep 5 |
| Doctors should feel embarrassed not to know more about HSD and hEDS | 505 | 63 | text | Sep 14 |
| Dental surgeon told me an interesting thing re: tooth stuff and EDS (and other chronic illnesses) and wanted to see if it rang true for anyone else | 404 | 148 | text | Sep 24 |
| Summer Fairy with Ehlers-Danlos Syndrome | 384 | 11 | image | Sep 17 |
| Are people not in pain? | 364 | 134 | text | Sep 2 |
| First time translating my chronic pain into art | 364 | 10 | image | Sep 7 |
| the worst bruise ever (NSFW) | 350 | 37 | text | Sep 14 |
| I love my parents but they're under scrutiny after my diagnosis. | 304 | 40 | text | Sep 8 |
r/ehlersdanlos Audience Overlap r/ehlersdanlos Subreddit Overlap & Related Communities
Overlapping audiences Communities with overlapping audiences
r/ehlersdanlos FAQ Frequently Asked Questions About r/ehlersdanlos
What's the best time to post on r/ehlersdanlos?
Based on posting volume, r/ehlersdanlos is most active on Tuesdays around 1 PM UTC. That window has the most community activity, but busier hours also mean more competition for attention.
How active is r/ehlersdanlos?
r/ehlersdanlos averages 32 posts per day and ranks in the top 5% for activity among tracked SFW subreddits.
How many upvotes do posts on r/ehlersdanlos get?
Posts on r/ehlersdanlos average about 20 upvotes this month (net score per post).
What kind of posts does r/ehlersdanlos get most?
On r/ehlersdanlos, most posts are text posts (93%)