1.0K posts analyzed Updated Jul 2026
Averages 34 posts/day, top 5% activity. Most active Thursdays around 3 PM UTC. Mostly text posts (90%).
r/ehlersdanlos Traffic & Engagement r/ehlersdanlos Traffic & Engagement
Volume and engagement over time Posting volume and engagement over time
Post Format
Upvote Distribution
How upvoted posts perform Only posts with 2+ upvotes. The bands below show how those posts are spread by upvote count.
r/ehlersdanlos Most Active Times When r/ehlersdanlos Is Most Active
Peak posting by day and hour (UTC) When this community posts most, by day and hour (UTC)
Most Active by Day
r/ehlersdanlos Flair Performance r/ehlersdanlos Flair Performance
Upvotes and volume by flair Average upvotes and post volume by flair
| Flair | Posts | Upvotes |
|---|---|---|
| Seeking Support | 258 (24.7%) | 9 |
| Similar Experiences? | 209 (20.0%) | 12 |
| General | 156 (14.9%) | 14 |
| Helpful Tips, Tricks, and Products | 146 (14.0%) | 13 |
| Rant/Vent | 92 (8.8%) | 47 |
| Discussion | 73 (7.0%) | 17 |
| Lighthearted | 28 (2.7%) | 36 |
| Good News! | 15 (1.4%) | 77 |
| Resources/News/Research | 14 (1.3%) | 9 |
| Work, School, and Accommodations | 12 (1.1%) | 14 |
Post Type Breakdown
Share by text, image, or link Share of posts by format: text, image, or link
r/ehlersdanlos Trending Keywords Trending Keywords in r/ehlersdanlos
Ranked by how often they appear Title keywords ranked by how often they appear
| Keyword | Mentions ▼ | Upvotes | Comments |
|---|---|---|---|
| heds | 80 (7.7%) | 23 | 13 |
| pain | 75 (7.2%) | 13 | 8 |
| anyone | 74 (7.1%) | 14 | 11 |
| eds | 70 (6.7%) | 18 | 13 |
| else | 33 (3.1%) | 25 | 20 |
| diagnosis | 32 (3.1%) | 34 | 8 |
| diagnosed | 31 (3.0%) | 26 | 8 |
| help | 30 (2.9%) | 8 | 10 |
| recommendations | 25 (2.4%) | 7 | 11 |
| advice | 25 (2.4%) | 6 | 5 |
r/ehlersdanlos Mentioned Domains Mentioned Domains in r/ehlersdanlos
Most linked sites Most linked sites in this subreddit
This community doesn't link off-site.
Its posts are text, images, or discussion rather than outbound links.
r/ehlersdanlos Top Posts Top Performing Posts in r/ehlersdanlos
Highest-performing posts Highest-performing posts. Each title links to Reddit.
Clinical diagnosis of clEDS
i hate doors
I am sick of seeing people suggest heds for semi-unrelated symptoms?
Anyone else have the eternal knot
What the hell just happened
Inspired by my ortho appts this week
Doctors calling everything "mild".
My Neo Walk cane arrived today and I'm so happy with it!! 💛🦓🌻
Do glasses hurt your ears?
What happened to basic medical practice?
| Title | Upvotes | Comments | Type | Date |
|---|---|---|---|---|
| Clinical diagnosis of clEDS | 592 | 21 | image | Jul 14 |
| i hate doors | 509 | 53 | image | Jul 17 |
| I am sick of seeing people suggest heds for semi-unrelated symptoms? | 424 | 223 | text | Jul 20 |
| Anyone else have the eternal knot | 403 | 143 | text | Jul 5 |
| What the hell just happened | 397 | 55 | text | Jul 29 |
| Inspired by my ortho appts this week | 330 | 41 | image | Jul 25 |
| Doctors calling everything "mild". | 328 | 48 | text | Jul 1 |
| My Neo Walk cane arrived today and I'm so happy with it!! 💛🦓🌻 | 295 | 18 | image | Jul 22 |
| Do glasses hurt your ears? | 276 | 93 | text | Jul 14 |
| What happened to basic medical practice? | 276 | 32 | text | Jul 17 |
r/ehlersdanlos Audience Overlap r/ehlersdanlos Subreddit Overlap & Related Communities
Overlapping audiences Communities with overlapping audiences
r/ehlersdanlos FAQ Frequently Asked Questions About r/ehlersdanlos
What's the best time to post on r/ehlersdanlos?
Based on posting volume, r/ehlersdanlos is most active on Thursdays around 3 PM UTC. That window has the most community activity, but busier hours also mean more competition for attention.
How active is r/ehlersdanlos?
r/ehlersdanlos averages 34 posts per day and ranks in the top 5% for activity among tracked SFW subreddits.
How many upvotes do posts on r/ehlersdanlos get?
Posts on r/ehlersdanlos average about 18 upvotes this month (net score per post).
What kind of posts does r/ehlersdanlos get most?
On r/ehlersdanlos, most posts are text posts (90%)